Getting close

I know I know,

I’m not very good at keeping this blog up to date.  Honestly I have had so much going on.

Worked all the way up to and including Christmas Eve selling fudge, then spent the following week mostly in bed, exhausted. I remember sat up in bed Christmas morning whilst my hubby gave me my gifts, then falling asleep for several hours, I had pushed my body so hard to get to Christmas Eve knowing I would have a week before returning to my day job.

And so What have I been up to for a past few months…

I took a break from the market stall for a few weeks, although we are now in a lovely new location.  St Nicholas Market here in Bristol. Every Saturday until just before I leave for India.

Our local shop Southville Deli in North Street and in Church Road, sell our fudge, running out often, great reviews from the staff and the customers.  So glad you guys love our fudge.

We had our inspection from the local council for food and hygiene   we got a 5 😀    Although we need bigger premises soon, we are growing which is amazing.

Remortgaging the house to help towards the cost of the treatment, that’s the husband poor now,  I still love him 🙂

 

More updates soon, just wanted to let you guys know i was still here, just so busy with the day job, the fudge job and the fundraising.

 

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India

Wow what brilliant news I have.

Whilst constantly researching facilities around the world that treat MS with HSCT, I found India.

A new facility that has started taking patients. And a bonus of being cheaper, about £23,793.38 rather than the £39,655.63 it would cost for Russia. Which would of included several thousand every 6 months to get MRI’s for Russia, dashing around London for special visa’s. Not to mention hotel costs for anyone wanting to come out to see me whilst i was there for a month.

Now the protocol for India is the same near as, as King’s Hospital here in the UK and seeing I don’t fit their criteria this makes sense to find one that does.

It’s also a JCI-USA Accredited Hospital so you can image the weight that holds too.

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daywise-schedule

And so I have been given the date of 3rd of June 2017. So 6 months to find £20,000. no pressure.

So please please please spread the word, I need help and fast.

It’s getting real now, I’m excited, scared..

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Zip Wire pictures

We did it, Family and friends helped raise a few hundred pounds today and came and helped make the day fun.

Don’t mind the audio, you can’t take these people anywhere… yes Angela & Naomi….. 😀

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Most of us had never done a Zip Wire so it was a great experience for us all.

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Two people unfortunately couldn’t make it and so the lovely people at The Wire _ Chepstow said we could take those two places and go again……so I did. It was a brilliant experience made special by some amazing friends.

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Zippety doodah

Today is Zip Wire day – Photo’s later.

Apologies for not posting for a while, in between relapses and working hard with #Fabfudge, I’ve not had time to sit down and have a moment.

I am seriously burning the candle at both ends to keep everyone happy.

So today, I’m going to be doing a zip wire. Launching myself from a 70m high cliff edge and speeding along a 80m deep flooded quarry.

The Wire is one of the UK’s longest, tallest and fastest zip slides, running the 700 metre length of the NDAC Quarry.

Why… Because well I honestly don’t know. When you fund raise there isn’t a guide on how to do it.

When you are faced with a task to raise a lot of money, you make a list. What can you do, sell cakes? yes everyone does the bake sale, (you have to buy or plead to get those cakes.)

Media attention is great, a bigger audience to read about why you need money. But what if the media are not interested? Do something out of your comfort zone, ok well i’ll try the Zip-Wire (But that wasn’t enough for some – now i won’t name the media who didn’t seem at all interested in this, but are happy to watch me throw myself out of an aeroplane – nope not going to happen, i am terrified of heights i really am and to try and make me do that for attention is too much far, to much, not everyone is up for that – sorry i just can’t do it) – Also it’s expensive to throw yourself out of an aeroplane, a deposit of £50 then you need about another £300 ( I don’t have that kind of money) – oh you get people to sponsor you easy!!

It’s not easy if people don’t want to sponsor you. An example, my husband set up a page telling people about events linked to me, the zip wire being the first event. We all sent out this page, didn’t overly spam it – guess how much we raised………. £30 (so far) i cried, lots of people telling me oh get a page up I’ll sponsor you and then the usual radio silence that i am so used to. I would rather people said, sorry not interested or i don’t have spare money. As you notice i don’t really do sugar coating and would prefer honesty back.

I need the money yes, but i also don’t want to end up on a YouTube clip crying my eyes out with snot running down my face for all the world to laugh at.

So why do people want to see you humiliated, dragged through the streets of social media. When you are low and desperate. (yes i am) I’m not a blogger, I don’t know the first thing, I just write how i feel, husband then changes a few things because i am too blunt. I want to tell it like it is and how i am feeling but apparently you don’t do that.

I’m also not a cute kitten with a bad paw that needs medical treatment.

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Now this is Dave who at the time of this picture was 10 months old and had just started to go out roaming at night. He unfortunately got ran over, but the poor thing crawled back home with a smashed pelvis and dislocated front paw. I found him in the morning a soggy mess that i first didn’t recognise as our kitten Dave.

Husband and i rushed him to the vets who gently suggested he had a broken spine and to let him go…. to euthanase. Now this household love animals, 3 cats and a dog well you would wouldn’t you. Husband asked for x ray first to confirm this before we made such a huge decision. So glad we did as it turned out his spine wasn’t broken but his pelvis was smashed, his back legs were useless, dislocated front paw. Poor Dave was a mess, at this point he wasn’t in pain as the first thing the vets did was give him pain relief. My husband asked for Dave to be referred to Langford – one of the best veterinary centres in the country and only a few miles down the road.

Dave had extensive surgery over several weeks and several months of rehab. costs were about £5k We set up a webcam and a donation page for Dave people kindly donated about £500 the rest we are paying out of our own pocket. Dave has a limp, his back legs have a mind of their own, his spine suffered nerve damage and so if you ever meet Dave his tail has a life of it’s own and confuses the other cats.

But Dave was and is a fighter, an absolute cutie too.

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His fur has grown back now, but look at that adorable face.

Must go it’s breakfast time for the animals. Well the dog refuses to get out of bed it’s too cold, although he’s kicked us out. That cats have jumped on us waking us up far too early demanding food.

So I shall pop up the pictures later as long as there are none with me crying with snot running down my face.

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